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Family at UZH

Taking Care of Adult Dependents

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Introduction

The (sudden) need to take on caregiving duties for adult dependents can create great challenges for students and employees. Members of the UZH community can quickly access the support they need and have their questions answered using the content and resources below.

We’d also like to draw your attention to this interesting podcast series about aging (“Übers Alter reden”, German only): zfg.uzh.ch

1. Personnel Regulations at UZH

The regulations on paid leave apply to UZH employees:

staff.uzh.ch

The legal basis for this is §84 and §85 of the implementation ordinance of the employment act of the Canton of Zurich (VVO):

zh.ch

Many caretaking situations are made more difficult by the fact that no legal documents for decision-making power and responsibility are in place. Two important documents are:

Power of attorney

Contracts granting power of attorney regulate personal care, asset management and representation in legal matters. The power of attorney must be granted in writing. This is in the interest of the affected person as well as their relatives. Swiss child and adult protection authorities (Kindes- und Erwachsenenschutzbehörde, KESB) only recognize power of attorney via the original legal document.

Living will

Living wills, also known as patient decrees, clarify a person’s desired medical treatment and life-saving measures. They serve as orientation for relatives and medical personnel in cases where a person is no longer capable of judgment. In a living will, individuals can freely define which treatments, interventions and medical procedures they would like to have depending on their state of health and which ones they reject. Additionally, a person can be named to make decisions on behalf of this individual when they are not capable of doing so.

Templates

Yo can find templates for these documents (in German) at:

3. First Steps of Caretaking Duties

First steps when someone is in need of caretaking

When it comes to adults who require care, the need can arise slowly or come all of a sudden. Not every situation leaves the person’s relatives with enough time to adapt to and prepare for the new situation. A lot of questions and decisions come up in connection with caretaking situations. There are changes in the life of the individual in question as well as that of their caretakers. Here is an overview of the most important points for caretakers.

Legal issues

Legal matters need to be taken care of in a timely manner, both in slowly deteriorating situations and in situations where the need for caretaking arises suddenly. The individual’s loved ones have to take on responsibility in situations that don’t leave a lot of time for clarifying legal issues. However, these issues are of utmost importance (see legal documents above).

  • Is there a living will/patient decree (which may also need to be notarized)?
  • Does the individual in question have a folder with emergency and health information? Where is it stored?
  • What company is the person insured by?
  • Do they have a will?
  • Does legal guardianship need to be established? (The point of legal guardianship is to ensure the well-being and protection of the person who needs caretaking.)

Medical Issues

Often it’s unclear what kind of health situation to expect in the near future. For example, it can be important to make arrangements for rehabilitation in addition to arranging short-term care, long-term care and assistance. Advanced age doesn’t mean that rehabilitation cannot be successful. Being in need of caretaking doesn’t have to be a permanent situation. The degree of independence of the affected person depends not only on the adaptability of their environment but also on how well they can regain their physical and mental capabilities. Organizing medical care in this situation is very important. The following questions can help:

  • Who is currently part of the treatment team?
  • What is the goal of the treatment? What is the prognosis?
  • Who is responsible for medical care in the future?
  • Does the affected person have a general practitioner to act as a hub for their care?
  • Can the affected person handle the correspondence and coordination of appointments on their own, or do they need help?
  • Does the person have family or friends who can help manage these contacts? Who can provide support?

Location and housing issues

People in need of caretaking often cope better with their situation if they can continue living in a familiar environment. They usually prefer to keep living in their own home. Ask them where they want to live. Everyone has different ideas when it comes to quality of life and living conditions. The preferences of the affected person should be taken into consideration. The following aspects can be considered when trying to find a suitable place for the person to live:

  • Where would they like to be cared for?
  • Is it possible to provide caretaking with their current living arrangements?
  • What is the burden of care in their current home or apartment?
  • Is their living space suitable for their limitations (e.g., tripping risks, elevator, wheelchair access)?
  • Can their apartment/house be renovated to meet these changed needs?
  • Does the physical layout of the home limit the person’s independence?
  • Is there enough room to carry out nursing duties (e.g., hospital bed)?
  • If they have to move to an institutional setting, what factors would be particularly important? Vicinity/location? Size? Services offered? Medical specialization?

Collaboration between everyone involved

The most important point when it comes to organizing nursing and care is maximizing a person’s independence and subjective feeling of well-being taking into account their limitations and abilities. Improving the caretaking situation – both for the affected person and those within their social environment – is equally important. Organizing nursing and care basically entails adapting the environment to the special abilities and needs of the affected person. These situations are complex, and the requirements of the person requiring care can only be met through the close cooperation of all family members, friends, medical professionals (doctors, physiotherapists, etc.) and other support services. Home care should therefore be based on several pillars. There are also various support services for the diverse needs of people requiring care:

  • Nursing services
  • Mobile meal services
  • Delivery services for groceries
  • Mobile social care services
  • Cleaning companies
  • Ride and driving services
  • Emergency systems
  • Semi-inpatient crisis intervention
  • Social psychiatric services from cities and municipalities

Relationship factors

If the person needing care is fortunate, there might be someone who is willing and able to take care of them at home. People who make the decision to act as caregivers deserve a great deal of respect and recognition. At the same time, however, this decision should not be taken lightly. The relationship between care recipients and caregivers is an important point to be considered in this decision. The following questions can help you make the right decision:

  • What kind of relationship do I have with the person who needs care?
  • What experiences have shaped our relationship?
  • How has this person behaved towards me?
  • Have I noticed any resistance on their part towards being cared for?
  • What is their attitude towards their new situation, their need for help and their dependence?
  • What are my motivations for being a caregiver?
  • How would they cope with care arrangements of this kind? Does this inspire fear or uncertainty?

The condition of the person needing care, their psychological resources and their coping strategies all significantly influence the caretaking process and can also have a negative impact. The following questions can help guide your decision:

  • Does the person requiring care accept their new situation?
  • Are they able to respond to your offer to provide care with gratitude or at least goodwill?
  • Can they still properly assess their living situation? Are they sometimes confused?

Time management issues

Caregiving responsibilities demand a lot of time. Be aware that this time needs to be invested every day, and usually more time is required as the situation develops. In addition to actual nursing tasks, there may also be the need to provide more general caregiving tasks, for example if the person has dementia, and to provide for the person’s social and communicative needs. You should be able to answer the following questions:

  • Do I have enough time to be a caregiver?
  • Do I have enough time to adequately meet the various additional needs of this person?
  • How much time can I make available for them? How much time do I want to make available for them?

Becoming a caregiver might mean the following for your life:

  • You have to deprioritize your own interests
  • You have to change or adjust your life plans
  • Mental and psychological strain
  • Less time for your own social life

The solution that you decide on depends on your own needs and those of the person requiring care. If possible, this decision should be made together.

Professional advice is indispensable

There’s not always enough time to calmly and carefully make the necessary preparations for at-home care under the guidance of a professional. Nevertheless, even if you are under time pressure, you should still use the opportunity to obtain professional advice, starting with the question of what you’re getting into, and covering other areas such as selecting care and household services or choosing a nursing home or other type of institutional care setting.

Adresses for advice and information in Zurich

Aging

Dementia

Violence

Addiction

4. Long Distance Care

Taking care of relatives who live in a distant city or even in another country can be challenging and overwhelming. Here are a few of the most important points that you should consider.

Help your relative accept assistance from outside the family

  • Explain that you care about their well-being. Acknowledge and discuss any fears and reservations on their part.
  • Treat them with respect and make it clear that they are ultimately responsible for their care – unless they are no longer mentally capable of making their own decisions.
  • Get a clear overview ahead of time about possible financial and medical resources that can be used in case the situation worsens.

Clarify the available in-person caregiving support

  • Get in touch with any close friends, neighbors and/or church organizations that your relative may be in contact with. Create a contact list with telephone numbers and email addresses. Make sure that these contacts also have your contact information.
  • Ask your close family members to have a meeting (can also be online) to discuss all the important aspects and to make sure that duties are shared by everyone.
  • Clarify whether a caregiving or nursing service needs to be used

Make a list with contact information of all important service providers and institutions

  • Landlords
  • Doctors
  • Dentists
  • Nursing services
  • Electric company
  • Water company

Regularly monitor the situation

  • Schedule regular (video) calls with the person requiring care and with people who are providing in-person support, setting a regular time and day if necessary.
  • Visit the care recipient regularly in person, if possible, rotating with other family members and friends, and be on the lookout for any changes in their condition. Can the person still independently prepare their food? Do they still have an overview of their finances? How is their mental health? Is their behavior consistent with their personal safety?
  • Try to schedule doctors’ appointments during your visit so that you can get to know their doctors and can stay in touch with them.

Do you have copies of their most important documents, and do you know where important documents can be found in the person’s household?

  • Health insurance cards
  • Copies of identification cards
  • Additional insurance documents
  • Will
  • Living will
  • Power of attorney (medical or financial)

Set up a medical emergency call system

5. Mental Health Support

The Senior Life advisory center at UZH offers support to:

  • People who are supporting or looking after aging parents, or who would like to know how to best interact with them
  • Those struggling to look after or provide appropriate care to seniors or adult dependents

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